Telemedicine-
Ethical Challenges and Issues
Abstract
Telemedicine
is the term used for medical practices involving information technology. For
example, the use of emails, video conferences, chats for the discussion of
health conditions and medical prescriptions. It is of great importance as applying
this technology; people don't need to physically meet up with doctors when
there is a pandemic. It overcomes the geographical distance. But there are
certain challenges and ethical issues that halt the
implication of telemedicine technology. Out of which, the vague policies and
the lack of proper regulation, data protection and confidentiality are the most
important barriers in telemedicine technology. By improving the ethical issues
and by having a clear format about telemedicine technology, we can greatly
benefit from telemedicine even if we are in that geographical area where public
health services are not common.
Keywords:
Telemedicine technology, ethical issues, lack of regulation, confidentiality,
data protection.
INTRODUCTION
Telemedicine is the use of audio,
video and data communication in healthcare practices. It is the exchange of
health information and medical practices through computerized communication for
the improvement of a person’s health. Telehealth is a broader term encompassing
the terms telemedicine, tele research and tele education [1] [2].
There is no proper definition of
telemedicine. But it is the electronic connection between the patient and the
health care professional. For example, use of email to schedule appointments,
video conferences, online chats to discuss symptoms and issues, internet
counselling and web counselling. In other words, telemedicine is to discuss
health problems and to deliver health care at a distance rather than physically
meetup with doctors [3][4],
Two main
areas are covered by telemedicine arevirtual association between patient and the doctor and the
treatment prescribed by the doctor and flow of information is the second
approach covered by telemedicine [1]. In the 1970s, the term telemedicine was
used in order to explain the condition in which patients are examined with the
help of telecommunication equipment. Some of the equipment used in telemedicine
technology are tele-statoscope, tele-electrocardiogram, tele biologic
diagnostic equipment, tele auriscope, tele radiology, visit cameras,
videoconferences equipment, diagnostic ultrasound, remote surgery and tele Spirograph[2].
The term telemedicine is broadly
used now. Any use of communications technology related to health conditions
also sometimes comes under telemedicine. Taking a more limited approach is useful;
it would be used to describe situations in which either communication occurs
between two medical providers or between a medical provider and a specific
patient. The most common example for it is to contact a doctor to seek health
advice or assistance or medical prescription on telephone. Considering this
example, it is clear that in developing countries, having a functional
telephone facility at every public health center will definitely play a
promoting role in health services. This idea was implemented and success was
reported. The Grameen Village Phone program, the Health Watch Project in Tamil
Nadu and the Satellite PDA Project in Uganda proved the success rate and they
demonstrated that in practice, there are no difficulty and barriers to achieve
this objective [4].
There are certain advantages of
telemedicine technology. In areas where proper health
care is not sufficiently present, telemedicine has been proved to be very
advantageous.Telemedicine passes the geographical barriers as physical meeting
is not done in telemedicine technology [5].
Challenges associated with
Telemedicine and telecare
There are certain ethical and
legal barriers in the implication of telemedicine technology. These include
confidentiality, vague policies, data protection and data management, patient’s
consent and lack of equipment due to low profitability in this business.(Figure
1)

Figure
1: Ethical issues associated with Telemedicine Technology
1.
Health information of patients
In order to seek treatment, patients
allow health-care professionals to obtain their sensitive health information
and information related to other matters by having trust in them. It is their
right to expect that their privacy will be protected and respected by health
care professionals and they will act accordingly. They do so in confidence so
the sensitive information which can result in identification of patients should
not be opened or disclosed in front of anyone. Moreover, it is not ethical to
use that information for some other purpose along with health service without
the patient's consent. In some conditions, people may have a lack of trust, or
they can be unaware that their health information is not disclosed so it is
important to maintain the trust of patients taking part in work. Confidential
services must be provided by health care professionals providing telemedicine
services. But anonymous identity is not confidential. The health information
can be published by telemedicine providers without the person being disclosed.
Telemedicine service providers should have a knowledge of their duties and
obligations related to disclosing health information. [6][7]
2. Data
Protection and Management
The
data of the patients must be protected. There is a regulation which describes
how to understand and manage personal data that is General Data Protection
Regulation.In
April 1999, a rule related to the quality of healthcare services was made by Trust
and Health Authorities. in this
rule, they stated that physicians should be responsible for the quality of
services provided by them and they have to report to Trust and health
Authorities on daily basis. [12]
This
is the responsibility of telemedicine service providers to use safe devices
which should not do any harm to the patient and easy handling devices. The doctor must pay utmost attention to the
physician while giving the patient's health information and data to anyone.
Regarding data protection, there are many hypotheses. One of the hypotheses
focus on the anonymity of online data, another is that the personal data of a
patient should be transmitted to other members of the telemedicine providers in
encrypted language. During transmission of data of large groups of members of
families, extra protection of data must be assured. However, a study showed
that psychiatric patients in Australia, rather than discussing their problems
with the health expert on video call, preferred a face-to-face meeting even if
they had to wait for a long time. Everyone agrees that the health information
and personal data is sensitive and violation of privacy can result in criminal
and civil crime. So, it must be protected at maximum. But due to the lack of a
universal format describing obligations for all, data protection is a main problem
in implementing telemedicine and developing trust to patients. Moreover,
because of lack of proper regulation, there is a great possibility of misusing
the personal data.[1][5]
3.
Consent
Health care professionals can
disclose the data where the patient gives consent for disclosing. For having
consent by the patient, all the necessary information should be given to the
patient. If he knows all the possible options and he is given a chance to
choose, then there is a great chance of valid consent by the patient. By
knowing the benefits and burdens about technologies and by having experience,
he can change consent. New technologies can result in the risks which cannot be
understood so it is ethical to inform patients about all the information
regarding new technologies used in the treatment including its risks the valid
consent can be either written or oral. The information can be used for
treatment. But if you have to use that information for research purposes, you
require consent by the patient. [6][5]
4.
Accuracy
It is the frequently ignored issue
related to telemedicine technology. The health information provided by patients
should be accurate as medical intervention has to be made on the basis of
information provided. the patient may take incorrect reading which result in
the prescription of inappropriate treatment by the doctor.[7]
5.
Lack of Regulations
Absence of proper laws and
regulation regarding the implementation of telemedicine is a great difficulty.
Healthcare regulations stated that there is the only act regarding telecare
that is the Physician Act. According to this act, the treatment should not be
prescribed by the physician without the examination of patients personally.
Moreover, there is no clear regulation related to telemedicine and telecare which
can properly describe telemedicine and telecare. There is no proper information
regarding responsibilities, accountability of telecare providers and the
participants. The present laws and regulations do not provide sufficient
protection to the telemedicine providers. Further, there is a lack of equipment
for the telemedicine services because due to the improper regulations,
manufacturers are unwilling to design telemedicine equipment as there is only
small-scale profitability of this business. Furthermore, the pliability of
development of tele medicine equipment is also reduced by vague and
inappropriate limitations. There is no obvious law or regulation. So, without
the proper legislation, telecare services cannot be implemented rashly because
legal disputes can be easily caused by medical practices. It becomes a problem
to clear the duties and responsibilities. It is possible that patients
participating in telemedicine service misunderstand that telecare would handle
any future problem. Many of the physical measurement equipment for telecare
generally do not have a standard. The production of equipment on small scale is
not done by equipment manufacturers. As a result, there is a lack of tools used
in telemedicine and telecare. [8][9][10]
Conclusion
By
taking care of all the issues associated with telemedicine technology, we will
be able to gain benefits of this emerging technology.
Conflict
of Interest: none
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